L'Odyssée de Maxine
In a few words...
Welcome to the website of the Association L'Odyssée de Maxine.
We are dedicated to raising awareness and supporting Maxine who has
Charcot-Marie-Tooth.
A rare condition affecting the MCM3AP gene.
With only one case in France and 24 other cases worldwide, our mission is to create a community of support and information.
Join us in our quest to improve the lives of Maxine and those affected by this extremely rare disease.
06.2025 😢A new case has been reported in France. There are now 2 cases in France
22/09/2025 - The end of the fight...
My heart stopped when yours fell asleep,
Then it flew away when I was told you were gone.
It split into two pieces,
One living on earth, the other in heaven.
And even though you are no longer here,
My heart beats with love for you.
@maxine, my daughter whom I love
22/09/2025 - The end of the fight...
My heart stopped when yours fell asleep,
Then it flew away when I was told you were gone.
It split into two pieces,
One living on earth, the other in heaven.
And even though you are no longer here,
My heart beats with love for you.
@maxine, my daughter whom I love
