L'Odyssée de Maxine

In a few words...

Welcome to the website of the Association L'Odyssée de Maxine.

We are dedicated to raising awareness and supporting Maxine who has

Charcot-Marie-Tooth.

A rare condition affecting the MCM3AP gene.
With only one case in France and 24 other cases worldwide, our mission is to create a community of support and information.
Join us in our quest to improve the lives of Maxine and those affected by this extremely rare disease.

06.2025 😢A new case has been reported in France. There are now 2 cases in France

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